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Life with HSP11: Part - 7

With each passing day, I’m realizing that my journey with HSP 11 is as much about self-acceptance as it is about physical endurance. Some days, my legs feel heavy and uncooperative, while my mind races with frustration. But slowly, I’m learning to treat my body like a partner in this journey rather than an adversary.

Life with HSP11
Life with HSP11

Lately, I’ve started using mobility aids more consistently—a walking stick for short distances and, occasionally, a wheelchair for longer outings. Initially, it felt like surrendering to the disease, but now I see it as a tool of empowerment. Instead of being trapped at home, I can go out with friends, join family events, and even travel with more confidence.

There’s a kind of freedom in letting go of the fear of judgment. I’ve realized that using these aids doesn’t make me weak; it makes me resourceful. My worth isn’t defined by how well I walk but by the way I choose to live, even with HSP 11’s challenges.

I’ve also learned the importance of routine—regular physiotherapy, stretching, and mindfulness exercises. They’re not just physical activities; they’re small daily promises I make to myself that I will not give up. Each session reminds me that progress can be slow but that it does exist.

The mental battle is just as real as the physical one. There are moments when anger and sadness well up unexpectedly. But instead of pushing those feelings away, I’ve started letting them in, acknowledging them, and then letting them pass. Like clouds drifting across the sky, they remind me that emotions are temporary, even if the condition is not.

What truly lifts me up are the people around me—my unwavering support system. Their laughter, their stories, their kindness make even the hardest days a little lighter. And when I share my story—like I am now—I realize that I’m not alone in this fight. There’s a community out there that understands, that supports, that lifts me up when I stumble.

If HSP 11 has taught me anything, it’s that strength isn’t about avoiding challenges but about finding the courage to face them, day after day. And so, with every new sunrise, I remind myself: I am more than HSP 11. I am living—imperfectly, beautifully, and bravely.

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